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When Helicoptering Doesn’t Rescue – Giving Your “Sick” Child Wings

February 27, 2012 in Health, Newsletters and Freebies, Patient Adherance/ Compliance

Plainly put, being a sick teen sucks with a capitol “S”. I know, I’ve been there. There’s nothing you want more than to just be normal. I wanted to eat, and hang out, and play sports or do after school activities. But instead, I had half days because being on dialysis wiped me out much of the day. Being “different” was hard. Having an over protective family was harder.

So as a parent, what do you do? You want the best for them. You hassle them to keep up with their meds. You try to make them comfortable and maybe even start to do their responsibilities. Well, here’s my suggestion – STOP IT!

I can see the expressions now – maybe of shock or utter “oh no she di-n’t” face. But let me give you some reasons why I say so. Read the rest of this entry →

Disaster Preparedness for the Chronically Ill

May 26, 2011 in Newsletters and Freebies, Patient Adherance/ Compliance, Uncategorized

Earthquakes, floods, tornadoes – they’ve been all over the news! What’s a chronically ill girl (and coach who speaks about planning and action) like me to do but think “OMG…am I READY??!! What do I do??”. That got me thinking, so away on the internet I flew. I couldn’t find anything readily available. Maybe I wasn’t looking hard enough, I don’t know. I mean I found a few things, but I decided to know for myself. So I did some phone calls.

As a chronic patient, you know how near and dear our medicines are. Most times, they are our connection to healthy living, hospitalization, or sometimes – death if we don’t take them. So what do we do when a tornado blows them away? What if a hurricane comes and washes them out to sea? What if the earth opens up and swallows them whole??? Ok, I’m exaggerating here, but you get my point. What do we do? Read the rest of this entry →

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